You may remember that I completed a Parkinson's Disease smell test and submitted my results online. I figured I was done with the procedure, but then I received an email from a researcher at the Parkinson’s Progression Markers Initiative (PPMI) Study at Indiana University. She asked if I would be available for a call from their team about the next step in the study. I was.
During the call I found out the study is enrolling people both with and without Parkinson's. I was chosen because of the results of the smell text, my age, and sex. No specific result details were given, but they asked if I was interested in completing a DaTscan diagnostic imaging test for research purposes. I was.
I figured that with the excellent research hospitals in St. Louis I would be commuting across town for the test, but the closest facility is in Chicago. In early August Hubby Tony and I will travel to the Windy City. I will spend the better part of one day testing, then we come home the next day. All expenses will be reimbursed.
I'm looking forward to it.
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I took the test also. I got an email also. Mine said there will be other studies I could participate in. Meh...
ReplyDeleteIf they decide you may have the beginnings of Parkinsons, we'll have to talk.
I guess in this case my age or sex worked in my favor :-)
DeleteI hope everything goes well!
ReplyDeleteIn any case,
it is very good that these tests and studies exist,
because if you find something at an early stage it has a completely different result.
I would hope that they would share any disturbing results with me.
DeleteIt does seem a shame that you have to travel a fair distance to take the test. It will be an interesting experience, though.
ReplyDeleteChicago is only five hours away by car. Tony and I are looking forward to a road trip.
DeleteFilling my days with nothingness sounds like what I've been doing too. Good. luck with the test- hope all goes well.
ReplyDeleteI'm blaming the heat for my lack of energy.
DeleteGood for you Kathy! -Christine cmlk79.blogspot.com
ReplyDeleteWow a free trip to Chicago. That would be really worth it!
ReplyDeleteThat's what I thought also.
DeleteThanks for taking your brain to Chicago. The rest of you might be able to squeeze in one sight seeing adventure. My niece and her daughter travel from Atlanta to Philadelphia for their unique contribution to a rare disease research. Linda in Kansas
ReplyDeleteWe're already making plans for the extra time.
DeleteHow intriguing!
ReplyDeleteInteresting. Your participation will surely help others.
ReplyDeleteKudos to you! It"ll do you and others good.
ReplyDelete